The truth of living with inflammatory bowel disease….. (the stuff they don’t tell you)
- The fatigue – having 12 or more hours sleep and waking up like you haven’t even slept.
- The leaky bum- gross I know but it happens- imagine the feeling of opening your bowels but not knowing?
- The toilet anxiety- the huge anxiety around finding a toilet in time.
- The lack of understanding/compassion from friends/family and members of the public – it’s a lot more than a poo disease.
- You will probably end up knowing more about your disease than a GP.
- The endless GP/hospital appointments. the blood tests- colonoscopies,sigmoidoscopies and endoscopies… because who doesn’t love a camera down their throat or up there bum? (No paparazzi please)
- The mountain of medications.
- The effect the disease has on the rest of your body- you develop an illness you didn’t even know existed.
- The pain
- The sleepless nights
- The suppressed immune system- being prone to catching ANYTHING.
- Poo isn’t a taboo subject – you end up talking to anyone and everyone who listen.
- The fear of the unknown
- The huge effect the disease can have on your mental health.
These are just a few things that I’ve experienced since being diagnosed with Ulcerative Colitis.